Many of you have asked for more details regarding Riley’s diagnosis of Lyme disease and the troubles we have encountered accessing appropriate treatment for him. This blog is an attempt to fill in some of these details.
We will also use the blog as a way to keep in touch and communicate updates as Riley progresses with treatment.
Please go to the above link “Riley’s Journey with Lyme Disease” to read the story of Riley's deteriorating health this past year.
Many people have been perplexed as to why Lyme Disease is so controversial and why diagnosis and effective treatment in Canada is unavailable.
To better understand the controversy, we have done lots of reading, consulting and questioning to figure out what is going on (or should we say not going on) with the treatment of this disease in Canada.
If you link to “Lyme 101” you can read a summary of what we have learned about Lyme disease, other infections carried by ticks, and diagnosis and treatment issues.
Thanks to all of you who have been so supportive and caring during these past months. We feel incredibly blessed and grateful for your support.
Riley has felt very cared for and knows that he is surrounded by people who are “cheering him on”. He continues to astound us with his positive attitude, deep faith and gentle but determined spirit.
Thank you so much for creating this blog for Riley's story. Could you please post the information regarding the Foundation that can be used for channeling financial support?
ReplyDelete...prayers turned up to 'high' for Riley and family...
Paton Family
We 2nd Bryce's motion on all fronts! Keep on keeping on, Riley and gang!
ReplyDeleteA prayer for you this morning Riley, Evan, Terry and Christine. Healing knows no bounds...all our love
ReplyDeleteTicks don't live in the Western Canadian Rockies , like bears don't sh-- in the woods .
ReplyDeleteExcellent information .. SO SOOORRRY that your family or any family has had to become the crusaders for awareness of this disease.
You are a warrior on so many fronts, Riley. And you family willingly became your army . There is nothing stronger than pissed off parents, to get a job done . Buddhist Medicine Mantra Prayers sent your way... Pamela Rodger
Fantastic blog. Thanks for sharing your story and making us all more aware of how life has thrown you an enormous curve ball. Sending continued prayers for complete healing for Riley and continued strength for the entire family to get through this ordeal.
ReplyDeletePeace: The Higgins' Team
Rochester here. Prayers are being sent your way from several sources--I have told several of my friends who are praying. Riley, you come from a very strong line of ancestors. Great-great Grandpa Gus who cleared the land to farm, Great-Grandpa Wilton and Grandma Irene likewise pioneers, Grandpa Dennis and Grandma Jacquie full of life and love, and your parents. And I don't even know about the Moon side of your heritage.
ReplyDeleteOur love to you.
Great Uncle Vern, Great Aunt Joan, Dave and Dan
you were all in my thoughts over Christmas.
ReplyDeleteWe saw the video that Evan and Soj did . We laughed and trembled with anticipation .Love and Light. Pamela Rodger
Thank you for being our first link to finding out about Lyme disease - a friend emailed your link to us and through that we found Dr. Murakami's site and the list of symptoms that led us to pursue a diagnosis for our daughter (now 19). She is about where Riley is now symptom-wise after 8 months of treatment but would have been much worse had we not gotten help when we did. I have followed Riley's blog
ReplyDeleteand often prayed for him. What a horrible disease this is that robs our young people and yet what incredible spirit they display in the midst of it. Blessings, Rhonda Adrian